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Saturday, April 9, 2011

Changes -- quick update

Billy has been talking a lot lately about quality vs quantity of life.  We've been having this conversation since he was diagnosed, but recently it's become a focal point. 

Although his recent MRI seemed positive, the fact remains that there is nothing absolute about the treatment and symptoms of GBM.  The last few weeks have been more and more trying -- fatigue (sleeping 20 hours a day) and weakness with the inability to stand; more confusion and loss of short term memory.  We were supposed to see his oncologist last week and Billy just didn't want to go.  He has chosen (for the time being) to give treatment (Avastin and Chemo) a break.  To ensure the best "quality" of life, we met with Community Hospice this morning.  We will be receiving medical and psycho/social assistance here at home with Darlene continuing as his primary caregiver.  We are keeping our options open, and can restart treatment at any time. 

Your love and support is encouraged and appreciated although Billy has a very difficult time with the phone.  He is fighting a thrush infection which has reduced his voice to a whisper.  Cards, text messages, emails and this blog are a great way to let him know you're thinking of him.

We want everyone to understand that this is a positive step and should not be construed as "refusing" treatment or "giving up."  Our outlook remains optomistic and we find something to smile about every day.

We'll keep you posted.  Everyday is a new adventure.

Love,

Billy and Darlene

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