Has it really been nearly 3 months since we've updated the blog? Those 3 months have been a blur as we continually learn and adjust, learn and adjust. We continue to be so appreciative of our friends and families as they support us in so many ways. We love getting your cards, e-mails, texts and calls. Know that each one is important to us even though we may not always reply. Our daily routine keeps us pretty busy between Darlene's work, schedules for medications, doctors appointments and normal household responsibilities. Billy even has his own personal trainer who comes 3 days a week to help him work out and build up some muscle strength. When Arnold (yep, that's really his name) doesn't show up to put Billy through his paces, we still try to get in at least one exercise session a day. This week we were back to Duke for a check-up and got good news. The tumor does not show any growth and may even have shrunk slightly. This means that the treatment regimen we've been following seems to be working which is wonderful news. We will probably work with our doctors to see if we can tweak things slightly as Billy sleeps quite a bit during the day and we'd like to see if adjusting medicine will result in less fatigue.
We are scheduled to go back to Duke on May 24th and our goal between now and then will be to continue to help Billy regain his strength. Although he is dependent on his wheelchair now, he promises a walk on the beach by the summer. We continue to find joy in simple pleasures and Billy's sense of humor keeps us smiling.
Keep us in your thoughts and prayers as we keep you in ours.
Darlene and Billy
